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  • Writer's picturerevs4rett

O.R.S.A. President 2021

Many thanks to everyone for the kind words and well wishes.

As I embark on this new journey as the President of the @ontrettsyndromeassociation I am both humbled and honoured for the opportunity to advocate on your behalf.

Over the past 30 years, O.R.S.A. has made tremendous strides in the rare disease community and has helped many families overcome challenging obstacles.

O.R.S.A. is a beckon of light and hope for its members. A true testament of leadership and commitment from the past presidents (Gene, Greg, Terry and Kevin) and the many dedicated board members.

I am looking forward to continuing the legacy work to ensure that individuals with Rett syndrome are enabled to achieve their full potential and enjoy the highest quality of life within their community.

With sincere love and gratitude, I would like to thanks my family, friends and community for the encouragement and support to pursue my passion and for caring for our daughter Ella and all those affect by Rett syndrome. We truly appreciate you 💜

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